I can't decide what to do about going to the CEC for treatment. I spoke to Muriel from there today, and she seemed very anxious to schedule me, and I'm just not ready to make the decision. One major factor in all of this is money. I really need to get at least an estimate on the cost of the procedure, then figure out what I will ultimately be responsible for, plus the airfare and hotel, meals etc. I know my health is more important than money, my husband will be the first to say that, but for me personally it's something I need to know up front.
Also, she said since they do surgeries on Tuesdays, I'll be there for about 5 days, since I will spend one night in the hospital. I've never had to spend the night in the hospital after any of my laps, and how does this qualify as outpatient surgery if I will indeed be an inpatient? Looks like I'll be giving Muriel a call back.
Then there's the whole work issue, although I found out today that I am earning about 2 sick days per 2 months I am there, so if I can get about 6 days in the hopper before we go down, I might be good. My job is not physically demanding and they might even let me do some work from home once we would get back from Atlanta, so I wouldn't have to tap into my vacation days. Of course, this is all dependent on the fact I just have endo excised, and don't need (or want) a hysterectomy.
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ReplyDeleteClassic endo story. It's such a frustrating disease, that is for sure! I don't know what to tell you about the CEC, I don't know much about it. I always mean to ask my RE, but, I always forget. It's a shame that the RE you went to didn't give you the time of day.
ReplyDeleteI wish you the best of luck in this decision. Where do you live now? How far would Atlanta be?
Thanks for journaling here. It's always nice to find people to talk to about this mess!
Oh, that does help. I'll probably call them again this afternoon and at least let them know what I'm thinking. Thanks!
ReplyDeleteI live in PA, so it's about a 3-4 hour flight. We've flown down there before (for fun stuff!) and the flight isn't bad at all.
My first excision with the CEC I had to stay overnight, but I was also about as bad as Stage IV can get. My second excision and hysterectomy at the CEC I also stayed overnight. They do send you an estimate of what it will cost, but I will say that I am paying way more out of pocket than I was told. However, on their behalf they are great about taking whatever payment you can afford. For me personally, it was still the best decision I ever made...and I would do it all over again no matter what the cost. Good luck and keep us posted!
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