Friday, October 9, 2009
My "NoUterusTalkAllowed" Blog
I went ahead and created my new, no uterus talk allowed blog. If you want, you can follow it here. I'm still going to update this blog with details about my endo, but I wanted a place where I could talk about other things than my uterus! Of course, since endo is such a part of me (unfortunately) I will inevitably end up mentioning it on my new blog, but I wanted a separate place to talk about POSITIVE things going on in my life.
What IS normal?
Got my fourth post-op period yesterday. It was painful, but not AS painful as they were pre-op. The worst part is very intense sharp pains in my ovary area (those have gotten worse since surgery), so I wonder if they are twisting up again. Maybe adhesions could cause them to do that, not necessarily endo? I do believe that my doctor removed some endo, but there is either some left, the adhesions and scar tissue are really what's causing my pain, or I have adenomyosis.
My husband asked me if I was just getting cramps like everyone else does, or if they really are bad endo cramps again. I get what he was getting at -- are these cramps normal ones that someone without endo gets? I don't think so -- the pain is pretty bad, and it's sharp, not a dull cramping. I honestly don't know what it's like to have a "normal" period. Other people I've known (without endo) don't ever mention their period or pain, so I have to believe the pain I am still feeling isn't normal.
I've also heard people who go through labor and childbirth say labor pains are like "really bad period cramps". So I wonder, bad cramps for THEM? Would I tolerate it just fine? I mean, if labor is worse than my kind of cramps, then that scares the crap out of me and honestly could affect my decision on having children!
My husband asked me if I was just getting cramps like everyone else does, or if they really are bad endo cramps again. I get what he was getting at -- are these cramps normal ones that someone without endo gets? I don't think so -- the pain is pretty bad, and it's sharp, not a dull cramping. I honestly don't know what it's like to have a "normal" period. Other people I've known (without endo) don't ever mention their period or pain, so I have to believe the pain I am still feeling isn't normal.
I've also heard people who go through labor and childbirth say labor pains are like "really bad period cramps". So I wonder, bad cramps for THEM? Would I tolerate it just fine? I mean, if labor is worse than my kind of cramps, then that scares the crap out of me and honestly could affect my decision on having children!
Monday, October 5, 2009
Got my surgical report
I finally got the official records from my surgery. I pretty much already knew everything, but two things surprised me:
1. I had a lot of adhesions. Like, everywhere the surgeon went, he found adhesions. I assume this is from the other 4 surgeries I've had. They were especially bad on and around my ovaraies (hence the oophoropexy). When I talked to him he didn't go into too much detail about this, but the report makes it seem like I am covered in them, which might explain why I am still in pain.
2. My surgeon sent 6 samples that he excised (it did say specifically in the report that he excised) to the lab. The pathology report came back as showing "no endometriosis found" on 3 of the samples! If there was no endometriosis found, what was that tissue? Obviously nothing too bad, but it makes me wonder how much endo I had if I am still in pain.
So now I am back to square one, it feels like.
1. I had a lot of adhesions. Like, everywhere the surgeon went, he found adhesions. I assume this is from the other 4 surgeries I've had. They were especially bad on and around my ovaraies (hence the oophoropexy). When I talked to him he didn't go into too much detail about this, but the report makes it seem like I am covered in them, which might explain why I am still in pain.
2. My surgeon sent 6 samples that he excised (it did say specifically in the report that he excised) to the lab. The pathology report came back as showing "no endometriosis found" on 3 of the samples! If there was no endometriosis found, what was that tissue? Obviously nothing too bad, but it makes me wonder how much endo I had if I am still in pain.
So now I am back to square one, it feels like.
Been awhile...
As usual, it's been awhile since I blogged. Although when the title of the blog is "My Big Busted Uterus", you're kind of limited as to what you can write about! Maybe I should have another blog that talks about something fun! I can call it "NoUterusTalkAllowed".
Last month I had horrible cramps, which was my third post-op period (and it also came a week early! yay!). I have also been feeling a pulling sensation in my lower abdomen, like I had before my surgery, and what I assumed was my ovaries pulling and twisting themselves into my uterus. So, I'm not sure what is going on. I'm going to go ahead and be a pessimist and say the surgery didn't work. Period #4 is due this week, so I will see what happens.
Last month I had horrible cramps, which was my third post-op period (and it also came a week early! yay!). I have also been feeling a pulling sensation in my lower abdomen, like I had before my surgery, and what I assumed was my ovaries pulling and twisting themselves into my uterus. So, I'm not sure what is going on. I'm going to go ahead and be a pessimist and say the surgery didn't work. Period #4 is due this week, so I will see what happens.
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